PCI - Primary Health Care Informatics

Main Objectives

The group aims to be a focus for people to from a primary health care background, or conducting research into primary care to come to EFMI conferences. We aim to put on events, generally workshops at EFMI meetings and use the outputs from these to create a submission to the following years IMIA Yearbook for Medical Informatics. We work in close collaboration with national and the IMIA primary care working groups.

  • The aim of the group is to promote and develop primary care informatics as a specialism within health informatics [1].
  • The group aims to put on workshops, and where feasible visits to primary health care facilities, at EFMI conferences.
  • Increase the peer review primary health care informatics literature.
  • Our three current themes are: (1) How to model research studies based on routinely collected data [2]; (2) Ontologically rich approached to case finding in routine data [3]; (3) Developing linked ethics and privacy frameworks.  (4) Methods for the direct observation of the use of technology in the clinical consultation [4]..

 

Planned Activities

2017  Workshop at MIE 2017 in Manchester

 

Please contact the working group chair if interested in participating: s.lusignan@surrey.ac.uk 

 

Primary Health Care Informatics Working Group aim and objectives for the meeting:

Aim:

The aim of the primary care informatics working group (PCIWG) workshop will be to understand the potential benefits and possible unintended consequences of the technologies being presented in the Village of the Future.  Additionally, we will explore the potential impact of these technologies on the content of the computerised medical record – its volume, content and scope – as these technologies are introduced.

Objectives:

  1. To learn from the experience from and WG members how have experience of innovative practice in the five pillar areas: (1) Technological Interoperability, (2) Semantic Interoperability, (3) Human Factor Engineering, (4) People's Priorities and Expectations, and (5) Societal Incentive Framework.  WG members will be invited to submit two PowerPoint slides about a cutting edge area of informatics.
  2. Critically appraise the demonstrations available in the Village of the Future: What are the benefits for primary care, what might be the unintended consequences.  Volunteers will be asked for in advance of the workshop to explore each theme/pillar.
  3. Seek example outputs from each theme/pillar how might these have greatest impact on primary care in the future.  In particular:  What types and volume of data and information might be generated that might need to be stored in practice or locality computerised medical record systems; What types, and content of data might be provided direct to patients or be placed in personal electronic health records?
  4. Plan dissemination activities, in particular the working group’s contribution to the Yearbook of Medical Informatics, and a paper in Informatics in Primary Care.

Contact Simon de Lusignan s.lusignan@surrey.ac.uk   OR Harshana Liyanage h.liyanage@surrey.ac.uk if you are interested in participating/contributing  

 

Recent Activities

2014 

  • Workshop at MIE2014 Village of the Future: The role of primary care informatics in enabling care to be preventive, personal, and participative care

  •  EFMI STC 2013 Prague.  Your chair also co-chaired the scientific committee and presented about developing ontologies to capture adverse events following immunisation

2013

  • MEDINFO 2013 Denmark: We held a workshop 22nd August to explore the role Primary Care Informatics in underpinning patient safety and clinical governance; exploring how to develop an international perspective to this theme [5].
  • EFMI STC 2013 Prague: We co-organised a workshop: Using Information to Improve the Quality of Care in Type 2 Diabetes in Primary Care, which took place April 16th 2013, 15.00 – 18.00 in the Great Hall of Facultz of Medicine of Charels Universit in Prague [6]; co-chaired by Profs Simon de Luisignan and Štěpán Svačina. There have been collaborative publications from this workshop [7].
  • Yearbook of Medical Informatics 2013: The WG developed a paper developed from our workshop on use of ontologies and sematic integration to support chronic disease management [8].

Activities planned for 2014

  • MIE Conference 2014: We plan to run a workshop in collaboration with the organisers.

Relevant Publications 2013

[1] de Lusignan S. What is primary care informatics? J Am Med Inform Assoc. 2003;10(4):304-9

[2] de Lusignan S, Pearce C, Kumarapeli P, Stavropoulou C, Kushniruk A, Sheikh A, Shachak A, Mendis K. Reporting Observational Studies of the Use of Information Technology in the Clinical Consultation. A Position Statement from the IMIA Primary Health Care Informatics Working Group (IMIA PCI WG). Yearb Med Inform. 2011;6(1):39-47.

[3] Liaw ST, Rahimi A, Ray P, Taggart J, Dennis S, de Lusignan S, Jalaludin B, Yeo AE, Talaei-Khoei A. Towards an ontology for data quality in integrated chronic disease management: a realist review of the literature. Int J Med Inform. 2013;82(1):10-24.

[4] de Lusignan S, Liaw ST, Krause P, Curcin V, Vicente MT, Michalakidis G, Agreus L, Leysen P, Shaw N, Mendis K. Key Concepts to Assess the Readiness of Data for International Research: Data Quality, Lineage and Provenance, Extraction and Processing Errors, Traceability, and Curation. Contribution of the IMIA Primary Health Care Informatics Working Group. Yearb Med Inform. 2011;6(1):112-20.

[5] Pearce CM, de Lusignan S, Phillips C, Hall S, Travaglia J. The computerized medical record as a tool for clinical governance in Australian primary care. JMIR Res Protoc. 2013 Aug 12;2(2):e26. doi: 10.2196/ijmr.2700.

[6] EFMI PCI WG Workshop EFMI STC2013 Prague. URL: http://stc2013.org/assets/files/WS3_UsingInformation_Diabetes.pdf

[7] Seidu S, Davies MJ, Mostafa S, de Lusignan S, Khunti K. Prevalence and characteristics in coding, classification and diagnosis of diabetes in primary care. Postgrad Med J. 2014 Jan;90(1059):13-7.

[8] Liyanage H, Liaw ST, Kuziemsky C, Terry AL, Jones S, Soler JK, de Lusignan S. The Evidence-base for Using Ontologies and Semantic Integration Methodologies to Support Integrated Chronic Disease Management in Primary and Ambulatory Care: Realist Review. Contribution of the IMIA Primary Health Care Informatics WG. Yearb Med Inform. 2013;8(1):147-54.

[9] Liyanage H, de Lusignan S. Ontologies to capture Adverse Events Following Immunisation (AEFI) from real world health data. Stud Health Technol Inform. 2014;197:15-9.

Informatics in Primary Care remains the journal of choice for the working group; http://hijournal.bcs.org/ SdeL is the Editor with other key members of the working group involved with the journal. The journal is now free-full-text online and also free to publish; due to the support of the British Computer Society (BCS) Health. Submission is now via an online submission system.

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